Inherited Blood Disorders Survey

[Bimzoori]

I'd like to get an idea of how prevalent inherited blood disorders are in our community and how much awareness there is.


Which of the following are you?

- Sickle Cell trait carrier
- Sickle Cell Aneamic (you have the full blown disorder)
- Alpha Thalassemia trait carrier
- Alpha Thalassemia major
- Beta Thalassemia trait carrier
- Beta Thalassemia major
- G6PD defficient


(Moderator, please create a poll for the above)


Questions:

- If you are a carrier of an inherited blood disorder, how did you come to find out about it?
- How much knowledge do you have about these inherited disorders?
- What is your source of information when it comes to inherited blood disorders?
- Do you think there is enough awareness in the community about these conditions?
- How important do you think it is to screen for inherited disorders prior to marriage?



Other than the above questions please feel free to contribute to the topic..

[ToomuchaT]

.. im sickle cell trait carrier .. poor girls in my family were not lucky enough to marry me lol.

[Angel_Eyes]

I'm none...al hamdulilah.

[Endure Whisper]

I am a sickle cell trait carrier.

- If you are a carrier of an inherited blood disorder, how did you come to find out about it?
My parents had me checked at an early age.

- How much knowledge do you have about these inherited disorders?
I know alot about sickle cell disease.

- What is your source of information when it comes to inherited blood disorders?
To begin with, I live in a family where so many of us suffer from sickle cell trait/disease. I grew up knowing about it, and then at some point of my life, started reading about it on the Internet.

- Do you think there is enough awareness in the community about these conditions?
Not at all!

- How important do you think it is to screen for inherited disorders prior to marriage?
Very important. It is essential to know what you're getting yourself into whether or not you decide to go for the marriage.

[Bimzoori]

I'm a beta thalassemia carrier (Thalassemia minor).. and I've come to find out about it less than a year ago.. It was quite un-expected as I never knew it ran in the family.. after I got my results I asked my siblings to get tested and half of them turned out to be carriers too! To be honest I've always been oblivious to inherited blood disorders as I never thought I'd have to do anything with it until I actually found out I'm a carrier, ever since I've been educating myself on the topic... I do believe there isn't much awareness on the issue despite the fact that the prevelance is high in our country..